Leslie is having a great day!
She is very alert and awake. In fact, sleeping is not something she is doing much of at all anymore. She will doze off for 5-10 minutes at a time, but even when she is sleeping, she is quite restless. When she is awake, she looks all around. Her eyes are wide open. She still doesn't answer when we ask her who we are, but when we tell her who we are, she'll say "Oh, yeah!" When we say something funny to her, she will laugh, and she smiles nonstop. I told her that we are going to have a big birthday party for her for her 30th birthday party and she said "that would be awesome!" I asked her if I could give her a kiss, and she said yes, so I told her she needed to give me kissy lips, and she did. Then when I had to leave, she waved bye to me without any prompting. To me, this was huge.
Medically, she still has a ton going on. I got there when they were doing a dopplar on her legs and she has several blood clots in her right leg. Her left leg was fine. The treatment for the blood clots in her legs is heparin therapy, which she is already getting because of the clots in her lungs. Now we just have to pray that those clots don't move.
I never saw the neurologist (don't get me started...) so I don't know the results of the EEG or if they are going to do an MRI. The cardiologist came in and asked some questions. He said on the day she collapsed, her magnesium and potassium were low. Now I know electrolyte imbalances can cause arrhythmia's, but really? Why were they low, then? She hadn't been sick. She eats fine. He also said it could be a genetic defect, and in that cause, she'd need a defibrillator. I am all for that option. If my mind, it just makes sense. If her heart goes into another arrhythmia, it's there to shock it. If it doesn't, then, well, it's just there. Of course, there are always risks to her having one, but to me, the benefit (her life!) totally trumps the risks. They were supposed to come back in to talk to my family, but I had to get home so I will find out what they said later.
Tomorrow she will have a swallow evaluation to see if she can start drinking and eating instead of getting the tube feeding. While I was helping the assistant position her, she pulled her NG tube out. I swear, it was her mission to get that tube out and she seemed so relieved when it was out. I asked the nurse if we could just leave it out until the swallow evaluation, but the nurse said that she was using it to give Leslie her medications. She asked the doctor, and he said to try giving her her meds crushed up with applesauce. If she tolerated that, then great. If not, she would need a new NG tube. She will still have the swallow evaluation regardless. Let's pray she takes all of her medications good tonight! If she fails the swallow evaluation, she will need a PEG tube, which is a surgically placed tube that will go in her stomach to feed her. I'm not that worried about this. Of course, I want her to be able to eat on her own, but the PEG tube will be so much more comfortable for her than the NG tube.
As I always say...baby steps. But I can also say now that for the past 28 years (I'm her baby sister) I have far underestimated her strength. She is being so strong. I have never seen someone fight the way she is fighting.